Joel Nelson

Joel NelsonJoel NelsonJoel Nelson

Joel Nelson

Joel NelsonJoel NelsonJoel Nelson
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awards, achievements and previous work

Projects

Events & Public Appearances

Projects

Shedding Light on Psoriasis

Filmed on location in Barcelona in October 2022, this exciting project by Almirall for World Psoriasis Day aims to raise awareness of psoriasis and its impact on people’s daily lives beyond the rashes you see on our skin.


Watch the documentary and see the artwork from my story here: https://www.sheddinglightonpsoriasis.com/


IFPAisland

A long-term project by IFPA to raise awareness of psoriatic disease by utilising Twitch and Animal Crossing: New Horizons. Throughout 2022, I'm hosting a dedicated weekly show on Twitch where we build an in-game island and community to raise awareness and offer a space where others can share their psoriatic disease story.


Read more about the project here: https://ifpa-pso.com/projects/ifpa-island


Versus Arthritis 'Stolen Stories' Radio Campaign

Featured in the Versus Arthritis 'Stolen Stories' national radio campaign, sharing my story on Capital, Classic, Gold, Heart, LBC and Radio X, which won Gold in the Media Week Awards 2020 - Best use of audio award.


You can read all about it here: Best use of audio award

Roles

Events & Public Appearances

Projects

Current 

  • Freelance Writer for Healthline Media (Bezzy PsA Platform)
  • Community Advocate and Freelance Writer for Health Union 
  • IFPA International Psoriatic Disease Ambassador 
  • Ambassador for WORD Day 
  • Owner of The Pain Company - an ethical clothing brand with the sole aim of raising awareness of Chronic Pain 
  • Creator and Host of the Chronic Pain Club Talk Show


Previously

  • Member of the Health Union International Patient Leadership Council 2022-23
  • NRAS Rheum for Inclusion Advisory Board Member 
  • Patient Ambassador for Ampersand Health 

Events & Public Appearances

Events & Public Appearances

Events & Public Appearances

 EADV Congress (Milan, Italy 2022) - Guest Speaker - 'Are you really listening to your psoriasis patient?' Symposium


Almirall Conference (Milan, Italy 2022) - Guest Speaker


 IFPA Forum (Milan, Italy 2022) - Guest Speaker - 'Psoriatic Disease, Mental Health, Stigma and Quality of Life'


Psoriasis Association Annual Conference (Birmingham, UK 2022) - Guest 'Patient Expert' Speaker


Islington Council (Online 2021) -  Host - UK Disability History Month 'In conversation with members of the disabled community' Staff and Public Event

Published words

Published words

Events & Public Appearances

You can find a selection of my published work on my Medium profile.


Dermatological Nursing Journal (March 2022| Vol 2 | Issue 1)

'Of flares and remission, the grief and the pain'


Psoriatic-arthritis.com

Author Archive


National Axial Spondyloarthritis Society

Pain and Parenting: when the happiest year of your life becomes the hardest (Spring Magazine 2020)


Scope

Chronic Illness & Mental Health: An Inevitable Combination

Parenting in pain and what it can't take away


ASone

As shielding comes to an end in England, do you feel safe?


Arthr

Arthr | Personal stories from people with arthritis - Joel's story


Psoriasis Association

Joel and Psoriatic Arthritis

Joel's Story

Interviews

Published words

Printed Media

 Television

BBC Look East - May 2020


Radio

BBC Radio Norfolk - Breakfast Show - June 2020
Times Radio Interview - Breakfast Show - August 2020 


Podcasts

 In Conversation: How to understand chronic pain - Medical News Today 


Living Life in Chronic Pain - Good Journeys with Second Mountain


The Worst Good News: What to do when Test Results are Normal, but you Feel Awful? - The Arthritis Life Podcast


Online Video

Living Life in Chronic Pain - Good Journeys with Second Mountain


IFPA Forum 2022 Promo Video


The Role of Patients in Healthcare talk - Psoriasis Association Annual Conference 2022


How do you balance family life with looking after your axial SpA? - NASS Facebook Live Event

Printed Media

Published words

Printed Media

https://www.medicalnewstoday.com/articles/in-conversation-how-to-understand-chronic-pain - Medical News Today


Living with psoriasis: ‘I spent a lifetime trying to crack on without diagnosis or effective treatment’ - The i Paper


'Chronic illness in the age of coronavirus' - The Independent


Chronic Illness Gifts for Spoonies by Spoonies - Healthline


24 year battle with painful arthritis - EDP/Norwich Evening News/Wymondham and Attleborough Mercury


My story - Versus Arthritis


New research reveals shielding experiences of millions with arthritis - Versus Arthritis


Father's Day post - Versus Arthritis


Living with Arthritis During the COVID-19 Pandemic: A Global Perspective - Creakyjoints.org


Hacked off with life right now? It’s OK - Arthur's Place


'Don't let arthritis be your excuse. Ever' - Juvenile Arthritis Research


'Not an old person's disease': Norfolk man on arthritis diagnosis aged 12 - Eastern Daily Press & Wymondham and Attleborough Mercury

Awards

Awards

Awards

WEGO Awards 2021


  • Nominated for eight categories
  • Winner - Best in Show: Facebook


Writing


  • Finalist/UK Entry for EULAR Edgar Stene Prize Competition 2023 (Read here)

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Joel vs Arthritis LTD

Norwich, England, United Kingdom

Disclaimer: I talk candidly about my personal health journey, but I cannot help you personally with your health issues. I am not a medical professional and in no way claim to be medically trained. My contact forms and email are not for medical support. Please get in touch with your primary healthcare professional for medical assistance.


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