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Shedding Light on Psoriasis
Filmed on location in Barcelona in October 2022, this exciting project by Almirall for World Psoriasis Day aims to raise awareness of psoriasis and its impact on people’s daily lives beyond the rashes you see on our skin.
Watch the documentary and see the artwork from my story here: https://www.sheddinglightonpsoriasis.com/
IFPAisland
A long-term project by IFPA to raise awareness of psoriatic disease by utilising Twitch and Animal Crossing: New Horizons. Throughout 2022, I'm hosting a dedicated weekly show on Twitch where we build an in-game island and community to raise awareness and offer a space where others can share their psoriatic disease story.
Read more about the project here: https://ifpa-pso.com/projects/ifpa-island
Versus Arthritis 'Stolen Stories' Radio Campaign
Featured in the Versus Arthritis 'Stolen Stories' national radio campaign, sharing my story on Capital, Classic, Gold, Heart, LBC and Radio X, which won Gold in the Media Week Awards 2020 - Best use of audio award.
You can read all about it here: Best use of audio award
Current
Previously
EADV Congress (Milan, Italy 2022) - Guest Speaker - 'Are you really listening to your psoriasis patient?' Symposium
Almirall Conference (Milan, Italy 2022) - Guest Speaker
IFPA Forum (Milan, Italy 2022) - Guest Speaker - 'Psoriatic Disease, Mental Health, Stigma and Quality of Life'
Psoriasis Association Annual Conference (Birmingham, UK 2022) - Guest 'Patient Expert' Speaker
Islington Council (Online 2021) - Host - UK Disability History Month 'In conversation with members of the disabled community' Staff and Public Event
You can find a selection of my published work on my Medium profile.
Dermatological Nursing Journal (March 2022| Vol 2 | Issue 1)
'Of flares and remission, the grief and the pain'
Psoriatic-arthritis.com
National Axial Spondyloarthritis Society
Pain and Parenting: when the happiest year of your life becomes the hardest (Spring Magazine 2020)
Scope
Chronic Illness & Mental Health: An Inevitable Combination
Parenting in pain and what it can't take away
ASone
As shielding comes to an end in England, do you feel safe?
Arthr
Arthr | Personal stories from people with arthritis - Joel's story
Psoriasis Association
Television
BBC Look East - May 2020
Radio
BBC Radio Norfolk - Breakfast Show - June 2020
Times Radio Interview - Breakfast Show - August 2020
Podcasts
In Conversation: How to understand chronic pain - Medical News Today
Living Life in Chronic Pain - Good Journeys with Second Mountain
The Worst Good News: What to do when Test Results are Normal, but you Feel Awful? - The Arthritis Life Podcast
Online Video
Living Life in Chronic Pain - Good Journeys with Second Mountain
The Role of Patients in Healthcare talk - Psoriasis Association Annual Conference 2022
How do you balance family life with looking after your axial SpA? - NASS Facebook Live Event
https://www.medicalnewstoday.com/articles/in-conversation-how-to-understand-chronic-pain - Medical News Today
Living with psoriasis: ‘I spent a lifetime trying to crack on without diagnosis or effective treatment’ - The i Paper
'Chronic illness in the age of coronavirus' - The Independent
Chronic Illness Gifts for Spoonies by Spoonies - Healthline
24 year battle with painful arthritis - EDP/Norwich Evening News/Wymondham and Attleborough Mercury
My story - Versus Arthritis
New research reveals shielding experiences of millions with arthritis - Versus Arthritis
Father's Day post - Versus Arthritis
Living with Arthritis During the COVID-19 Pandemic: A Global Perspective - Creakyjoints.org
Hacked off with life right now? It’s OK - Arthur's Place
'Don't let arthritis be your excuse. Ever' - Juvenile Arthritis Research
'Not an old person's disease': Norfolk man on arthritis diagnosis aged 12 - Eastern Daily Press & Wymondham and Attleborough Mercury
WEGO Awards 2021
Writing
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Joel vs Arthritis LTD
Norwich, England, United Kingdom
Disclaimer: I talk candidly about my personal health journey, but I cannot help you personally with your health issues. I am not a medical professional and in no way claim to be medically trained. My contact forms and email are not for medical support. Please get in touch with your primary healthcare professional for medical assistance.
Copyright © 2023 Joel Nelson - All Rights Reserved.