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Talking and Writing about Arthritis, Psoriasis, Chronic Pain, Mental Health and Patient Engagement to Change Lives
Talking and Writing about Arthritis, Psoriasis, Chronic Pain, Mental Health and Patient Engagement to Change Lives
Hi! I'm Joel, and I'm on a mission to raise awareness, improve support and advocate for those living with arthritis and autoimmune disease by sharing the realities of living with chronic illness, pain and associated mental health challenges.
I've won a WEGO Award for my contribution to global advocacy and use my creative skills as a Freelance Writer, Content Creator and Public Speaker alongside my personal story to inspire change and amplify and promote patient engagement and the value of the patient voice to improve outcomes.
I help organisations, non-profits and individuals to identify and understand the patient journey, pain points and value of lived experience in healthcare and policy at every step of the process. Ensuring that the patient's voice is heard in every project, strategy or service change and is considered as part of the decision-making process throughout. I have in-depth experience building online communities on multiple digital platforms - facilitating conversations about chronic illness, pain & invisible disability to provide essential Peer Support.
Current Roles
With the onset of inflammatory arthritis at just 10 years old and skin manifestations of psoriatic disease in my 20s, I have experienced the physical, aesthetic, and mental health impacts of psoriatic disease for most of my life.
In my early 30s, I decided to raise my voice and harness my experience to help others. I campaign actively for awareness and change, focusing on psoriatic disease, juvenile idiopathic arthritis, chronic pain and mental health. My goal is to stop the stigma around these diseases and help others feel less alone.
We need to consider more than test results, what hurts, and the cost of treatment when it comes to patient care. So I work to promote the importance and benefits of personalised care, shared decision-making, and multidisciplinary approaches, including mental health support that aims to treat the person as a whole, rather than just the symptom(s).
I am a published writer and host a podcast and Twitch and YouTube channel under the banner of ‘Joel vs Arthritis’, where I talk about the realities of living with chronic illness and pain and have built a growing community of peer support around the world through my candid, ‘no-filter’ approach.
Based in Norfolk, UK, I live with my wife and young son but increasingly travel the world to be involved in projects for change.
Joel Nelson
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In this video, I go through all the incredible things we achieved as a community at 'Joel vs Arthritis' in 2022 and thank you for being such wonderful people and supporters of my work. I couldn't do it without you.
The latest recording from our popular Twitch Chat Show. Inspiring interviews, moving stories and important conversations to raise awareness
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Joel vs Arthritis LTD
Norwich, England, United Kingdom
Disclaimer: I talk candidly about my personal health journey, but I cannot help you personally with your health issues. I am not a medical professional and in no way claim to be medically trained. My contact forms and email are not for medical support. Please get in touch with your primary healthcare professional for medical assistance.
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