Joel Nelson

Joel NelsonJoel NelsonJoel Nelson

Joel Nelson

Joel NelsonJoel NelsonJoel Nelson
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Award-Winning Patient Leader and Lived Experience Champion

Award-Winning Patient Leader and Lived Experience ChampionAward-Winning Patient Leader and Lived Experience ChampionAward-Winning Patient Leader and Lived Experience Champion

Talking and Writing about Arthritis, Psoriasis, Chronic Pain, Mental Health and Patient Engagement to Change Lives

Let's talk
Hire Me

Award-Winning Patient Leader and Lived Experience Champion

Award-Winning Patient Leader and Lived Experience ChampionAward-Winning Patient Leader and Lived Experience ChampionAward-Winning Patient Leader and Lived Experience Champion

Talking and Writing about Arthritis, Psoriasis, Chronic Pain, Mental Health and Patient Engagement to Change Lives

Let's talk
Hire Me

What I Do

Conversations to change lives

 Hi! I'm Joel, and I'm on a mission to raise awareness, improve support and advocate for those living with arthritis and autoimmune disease by sharing the realities of living with chronic illness, pain and associated mental health challenges.


I've won a WEGO Award for my contribution to global advocacy and use my creative skills as a Freelance Writer, Content Creator and Public Speaker alongside my personal story to inspire change and amplify and promote patient engagement and the value of the patient voice to improve outcomes.


I help organisations, non-profits and individuals to identify and understand the patient journey, pain points and value of lived experience in healthcare and policy at every step of the process. Ensuring that the patient's voice is heard in every project, strategy or service change and is considered as part of the decision-making process throughout. I have in-depth experience building online communities on multiple digital platforms - facilitating conversations about chronic illness, pain & invisible disability to provide essential Peer Support. 

Services

  • Freelance Writing & Columnist
  • Event and Charity Ambassador/Advocacy Roles 
  • Non-profit Trustee, Policy and Leadership Positions
  • Focus Groups and Patient Advisory Boards
  • Media Appearances as a Patient Expert
  • Awareness Campaign Championing
  • Patient Lived Experience Consultancy
  • Peer Support Community Building
  • Event Hosting and Public Speaking
  • Product Reviews


Find Out More

Current Roles & Titles

  • NHS England Peer Leader
  • Freelance Writer for Healthline Media
  • Community Advocate and Freelance Writer for Health Union 
  • IFPA International Psoriatic Disease Ambassador 
  • Founder of The Pain Company - an ethical clothing brand with the sole aim of raising awareness of Chronic Pain
  • Creator and Host of the Chronic Pain Club Talk Show
  • Trustee for Enabled2Parent




Full List

Connect With me

Our Content and Peer Support Communities

The Chronic Pain Club Talk Show

Facebook Chronic Pain Support Group

The Chronic Pain Club Talk Show

 Starting conversations to change lives, The Chronic Pain Club Talk Show exists to amplify the patient's voice and promote the value of lived experience.  Broadcast LIVE on Sunday evenings from 7pm (GMT) on the JoelvsArthritis YouTube Channel.


 

Learn more

The Joel vs Arthritis Podcast

Facebook Chronic Pain Support Group

The Chronic Pain Club Talk Show

 On a mission to raise awareness and improve support for those with chronic illness, pain, and associated mental health challenges by sharing the realities of living with long-term health conditions. We provide a platform for others to share their stories. 



Learn more

Twitch Channel

Facebook Chronic Pain Support Group

Facebook Chronic Pain Support Group

 Our Twitch channel exists to raise awareness of chronic illness and pain. To create safe, supportive spaces and build a peer community that allows anyone to enjoy gaming as an escape and way of managing their health realities socially.

We stream games that encourage audience interaction and facilitate conversation. 

Learn more

Facebook Chronic Pain Support Group

Facebook Chronic Pain Support Group

Facebook Chronic Pain Support Group

 A peer support group for those living with or supporting those in chronic pain and associated challenges, such as mental health and chronic illness.


To support each other, share tips and meet others that understand



Learn more

Minecraft Multiplayer Server

Minecraft Multiplayer Server

Minecraft Multiplayer Server

 Join us in our free-to-play Minecraft SMP! 

Custom built to create a chill and supportive environment that offers escapism and fun for those with chronic illness, pain, caregivers or otherwise in need.

To play, meet new people who understand, join the voice chat, or learn more, join our Discord server...

Learn more

Community Discord Server

Minecraft Multiplayer Server

Minecraft Multiplayer Server

 Have a chronic illness or support someone that does? Play computer games as a way of escaping or distraction? Join our friendly Discord community ...






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YouTube Channel

Minecraft Multiplayer Server

YouTube Channel

 Facilitating Conversations About Chronic Illness and Promoting the Importance of Lived Experience.
 

Check out our YouTube channel for podcasts, how-to's & self-care tips and interviews with leading advocates and medical professionals.


Learn more

Writing

Minecraft Multiplayer Server

YouTube Channel

 A collection of written awareness content, essays, news, poems and writing without commission designed to be shared on social media for personal, non-commercial use as part of my advocacy work. 




Learn more

my story

The power of lived experience

With the onset of inflammatory arthritis at just 10 years old and skin manifestations of psoriatic disease in my 20s, I have experienced the physical, aesthetic, and mental health impacts of psoriatic disease for most of my life.


In my early 30s, I decided to raise my voice and harness my experience to help others. I campaign actively for awareness and change, focusing on psoriatic disease, juvenile idiopathic arthritis, chronic pain and mental health. My goal is to stop the stigma around these diseases and help others feel less alone. 


We need to consider more than test results, what hurts, and the cost of treatment when it comes to patient care. So I work to promote the importance and benefits of personalised care, shared decision-making, and multidisciplinary approaches, including mental health support that aims to treat the person as a whole, rather than just the symptom(s).


I am a published writer and host a podcast and Twitch and YouTube channel under the banner of ‘Joel vs Arthritis’, where I talk about the realities of living with chronic illness and pain and have built a growing community of peer support around the world through my candid, ‘no-filter’ approach.


Based in Norfolk, UK, I live with my wife and young son but increasingly travel the world to be involved in projects for change.

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News and Words

Podcast

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Joel vs Arthritis LTD

Norwich, England, United Kingdom

Disclaimer: I talk candidly about my personal health journey, but I cannot help you personally with your health issues. I am not a medical professional and in no way claim to be medically trained. My contact forms and email are not for medical support. Please get in touch with your primary healthcare professional for medical assistance.


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