My Work

Signed in as:

filler@godaddy.com

Account

awards, achievements and previous work

Projects

Events & Public Appearances

Projects

Good Care for Psoriatic Arthritis

A project that aims to highlight GRAPPA treatment guidelines and create resources for both patients and medical professionals via a range of printed and digital mediums.

https://ifpa-pso.com/projects/psoriatic-arthritis-awareness

Shedding Light on Psoriasis

Filmed on location in Barcelona in October 2022, this exciting project by Almirall for World Psoriasis Day aims to raise awareness of psoriasis and its impact on people’s daily lives beyond the rashes you see on our skin.

Watch the documentary and see the artwork from my story here: https://www.sheddinglightonpsoriasis.com/

IFPAisland

A long-term project by IFPA to raise awareness of psoriatic disease by utilising Twitch and Animal Crossing: New Horizons. Throughout 2022, I'm hosting a dedicated weekly show on Twitch where we build an in-game island and community to raise awareness and offer a space where others can share their psoriatic disease story.

Read more about the project here: https://ifpa-pso.com/projects/ifpa-island

Versus Arthritis 'Stolen Stories' Radio Campaign

Featured in the Versus Arthritis 'Stolen Stories' national radio campaign, sharing my story on Capital, Classic, Gold, Heart, LBC and Radio X, which won Gold in the Media Week Awards 2020 - Best use of audio award.

You can read all about it here: Best use of audio award

Roles

Events & Public Appearances

Projects

Current

NHS England Peer Leader
Freelance Writer for Healthline Media (Bezzy PsA Platform)
Community Advocate and Freelance Writer for Health Union
IFPA International Psoriatic Disease Ambassador
Ambassador for WORD Day
Founder of The Pain Company - an ethical clothing brand with the sole aim of raising awareness of Chronic Pain
Creator and Host of the Chronic Pain Club Talk Show
Panel Member for IFPA Psoriatic Arthritis Treatment Guidelines Awareness Project
Trustee for Enabled2Parent

Previously

Member of the Health Union International Patient Leadership Council 2022-23
NRAS Rheum for Inclusion Advisory Board Member
Patient Ambassador for Ampersand Health

Events & Public Appearances

UK Govt. Disability Action Plan Consultation (Westminster, UK 2023)

Cabinet Office-arranged Meeting

IFPA Forum (Singapore 2023)

Promoting the 'Good Care for Psoriatic Arthritis' IFPA Project

EULAR Congress (Milan, Italy 2023)

Representing the Patient Voice and Promoting the 'Good Care for Psoriatic Arthritis' IFPA Project

EADV Congress (Milan, Italy 2022) - Guest Speaker - 'Are you really listening to your psoriasis patient?' Symposium

Almirall Conference (Milan, Italy 2022) - Guest Speaker

IFPA Forum (Milan, Italy 2022) - Guest Speaker - 'Psoriatic Disease, Mental Health, Stigma and Quality of Life'

Psoriasis Association Annual Conference (Birmingham, UK 2022) - Guest 'Patient Expert' Speaker

Islington Council (Online 2021) - Host - UK Disability History Month 'In conversation with members of the disabled community' Staff and Public Event